Scientific Advisory Board

Scientific Advisory Board

A Scientific Advisory Board has been convened to advise the HCU Networks on key priorities and guide which specific projects should be funded.

The current members of the Scientific Advisory Board Include:

Professor Viktor Kožich, (Chair of SAB); MD, PhD, Professor of Medical Genetics and Head of Institute of Inherited Metabolic Disorders, General University Hospital in Prague and Charles University-First Faculty of Medicine, Prague, Czech Republic. Read Professor Kožich’s bio
Professor Bridget Wilcken AM, MD, FRACP, FRCPA (hon), FHGSA, emeritus consultant at the Children’s Hospital, Westmead, Sydney; part-time metabolic physician, Sydney Children’s Hospital, Australia. Read Professor Wilcken’s bio
Professor Matthias R. Baumgartner, Prof. Dr. med., Head of Division for Metabolic Diseases and Medical Director of the Swiss Newborn Screening Program, Kinderspital, Zürich, Switzerland. Read Professor Baumgartner’s bio
Professor Henk Blom, PhD, Laboratory Specialist, Clinical Genetics, Erasmus University Medical Center, Rotterdam, Netherlands. Read Professor Blom’s bio
Professor Warren Kruger, Ph. D, Full professor, Cancer Biology program at Fox Chase Cancer Center, Philadelphia, PA, U.S. Read Professor Kruger’s bio
Dr Andrew Morris, MD, Consultant and Senior Lecturer in Paediatric Metabolic Medicine. Willink Metabolic Unit, Central Manchester University Hospital, UK. Read Dr Morris’ bio
Dr Kimberly Chapman, MD, Ph.D., attending physician in Genetics and Metabolism, Children’s National: Assistant Professor of Pediatrics and Integrated Systems Biology, George Washington University, U.S. Read Dr Chapman’s bio

Patient Representatives:

Tara Morrison, BA LLB, Director & Chair, HCU Network Australia
Margaret McGlynn, R. Ph., Ph. D. (hon), President of Board, HCU Network America

Past Members of Scientific Advisory Board

The Late Professor Jan Kraus, Ph. D, Professor Pediatrics / Cell and Developmental Biology, University at Colorado U.S. Read Professor Kraus’ bio

Responsibilities of the Scientific Advisory Board

The responsibilities of the Scientific Advisory Board include:

  • Work with HCU Network Australia and HCU Network America (HCUNAs) (and other patient groups interested in funding grants) to develop research strategy and identify key priorities for funding.
  • Provide non-binding but informed guidance on matters specific to HCUNAs research and funding strategies, including opportunities for new programs or clinical trials.
  • Provide peer review for applications submitted to HCUNAs for funding and provide recommendations on specific projects to be funded.
  • Support any grant applications submitted by HCUNAs to other funding bodies.
  • Participate in periodic reviews of HCUNAs Research Strategy.

Download a copy of the Scientific Advisory Board’s Terms of Reference.




Scientific Advisory Board