The Genetic and Rare Disease Network

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Patient-Expert Meeting 2019

28th February 2019 @ 8:00 am - 1st March 2019 @ 5:00 pm

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My name is Hayley and I am 17 years old. I have B6 non-responsive homocystinuria, which means I am constantly taking medication and must maintain a low-protein diet. Although this can be difficult at times, I am alive and well. Having HCU has not stopped me from doing many of the things that other 17…

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