HCU Data Collection Program

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Participating in the Program

Your participation in the Data Collection Program is one of the most important and critical efforts you can do. Patient reported outcomes can accelerate research and the development of future treatments and cures.

Rare Disease Research

Are you a stakeholder interested in using patient data to further your homocystinurias research?

Join the Program

Being part of the Data Collection Program means you can contribute to disease understanding which paves the way for a brighter future for the homocystinurias community.




HCU Data Collection Program