Programme

Programme

More information coming soon.

The following sessions are planned for the Patient-Expert Meeting 2019.

Session 1: State of the Art Lectures
Session 2: New Developments
Session 3: Newborn Screening
Session 4: Long-term Outcomes
Session 5: Disease Causing Mechanisms
Session 6: Voice of the Patients
Session 7: Dietary Intervention
Session 8: Novel Treatment Developments
Session 7: Interactive Panel Discussion