National Strategic Action Plan for Rare Diseases

National Strategic Action Plan for Rare Diseases

The National Strategic Action Plan for Rare Diseases (the Action Plan) was launched in 2020 after Australian academics first called for a national plan for rare diseases in 2010.

Rare Voices Australia (RVA) has led the collaborative development of the Action Plan. After extensive consultation with stakeholders around the country, the Action Plan has been developed by the rare disease sector, for the rare disease sector.  The Action Plan can be read here.