Evaluation Survey iHOPE 2021

What is your connection to homocystinuria?(Required)

Patient

Parent/Family member

Caregiver

Healthcare Professional

Healthcare company employee

Other

Please tell us why you attended the Patient – Expert Meeting(Required)

To exchange knowledge and experience with others

To feel part of a community of individuals/caregivers living with the same disorder

To listen to experts and learn more about the disorders

To enhance networks within these disorders

Overall, how satisfied were you with the logistical organisation of the event?(Required)

Did the Patient – Expert Meeting meet your expectations?(Required)

Healthcare professional attendees

Did you learn something at the meeting that will change the care you provide patients with one of the homocystinurias?

Will you share what you have learnt with your colleague(s)?(Required)

Yes

No

Maybe

Did you meet anyone at the meeting who you will keep in contact with after the event?(Required)

Yes

No

Please tell us what you liked about the meeting, such as the session that was most helpful to you.(Required)

Please tell us what you didn’t like about the meeting, such as the session that was least helpful to you.

Please tell us any topic you would like included in future meetings.

Patient/caregiver attendees

Has this meeting improved your understanding of the homocystinurias?(Required)

Will you take any specific actions as a result of what you have learnt at this meeting?(Required)

Will you share something you have learnt with someone who was not at the meeting?(Required)

Definitely

Maybe

I don't think so

Did you meet anyone at the meeting who you will keep in contact with after the event?(Required)

Yes

No

Maybe

Please tell us what you liked about the meeting, such as the session that was most helpful to you.(Required)

Please tell us what you didn’t like about the meeting, such as the session that was least helpful to you.

Would you recommend this event to others?(Required)

Yes

No

Maybe

Do you have any other suggestions for HCU Network Australia or anything else that you want to tell us?

Evaluation Survey iHOPE 2021

Evaluation Survey iHOPE 2021

How have healthcare and patient outcomes been improved as a result of iHOPE 2021 ?

2021 Patient Expert Meeting Feedback Survey

Healthcare professional attendees

Patient/caregiver attendees