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Latest Past Events

Navigating the Homocystinurias Webinar

HCU Network Australia invites you to join our upcoming virtual panel discussion on May 18 AEST. Navigating the Homocystinurias Our webcast will explore what it means to ‘Navigate the Homocystinurias’…

4th International Homocystinurias Patient-Expert Meeting

  iHOPE Meeting 2021   The 4th International Homocystinurias Patient Expert (iHOPE) Meeting brought together leaders in the field of homocystinuria research, clinical care, nutrition and advocacy. iHOPE 2021 was…

Living With Classical Homocystinuria Webinar

This live webinar discussed the impact classical homocystinuria takes on a person and their family, including tips for managing the disorder and advice for staying positive in the face of…

Patient-Expert Meeting 2019

NH Collection Roma Centro Via dei Gracchi, 324, 00192, Roma

On behalf of the organising committee, I would like to invite you to Rome, Italy, on Thursday 28th February - Friday 1st March 2019 for the 3rd International Homocystinurias Patient-Expert Meeting. The meeting…

Patient-Expert Meeting, Rio 2017


The host city of the 2016 Olympic Games is now the proposed venue for the 2nd International Patient-Expert Meeting for Homocystinuria. The Meeting is being scheduled outside of the scientific…

Milford Track World Rare Disease Day 2017

Assemble the hiking boots and get ready to take on what has been described as "the finest walk in the world". Experience New Zealand's Milford Sound next World Rare Disease…

Clinical Guidelines Webinar

Join us for an online webinar featuring Doctor Andrew Morris, the first named author on the recently published Guidelines for the diagnosis and management of cystathionine beta-synthase deficiency from the…

Patient & Expert Meet, Prague 2016

Novotel Praha Wenceslas Square Kateřinská 38, 120 00, Prague

It is our pleasure to share with you details of the HCU and Methylation Defects Patient & Expert Meet planned for World Rare Disease Day, 2016. The Meet is being…




Patient & Expert Meet, Prague 2016