Navigating the Homocystinurias Webinar
HCU Network Australia invites you to join our upcoming virtual panel discussion on May 18 AEST. Navigating the Homocystinurias Our webcast will explore what it means to ‘Navigate the Homocystinurias’…
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Latest Past Events
4th International Homocystinurias Patient-Expert Meeting
iHOPE Meeting 2021 The 4th International Homocystinurias Patient Expert (iHOPE) Meeting brought together leaders in the field of homocystinuria research, clinical care, nutrition and advocacy. iHOPE 2021 was…
Living With Classical Homocystinuria Webinar
This live webinar discussed the impact classical homocystinuria takes on a person and their family, including tips for managing the disorder and advice for staying positive in the face of…
Patient-Expert Meeting 2019
NH Collection Roma Centro Via dei Gracchi, 324, 00192, RomaOn behalf of the organising committee, I would like to invite you to Rome, Italy, on Thursday 28th February - Friday 1st March 2019 for the 3rd International Homocystinurias Patient-Expert Meeting. The meeting…
Genetics of HCU, therapies and potential candidates webinar
The online webinar discussed the genetics of HCU including an overview of classic & potential therapies. This webinar has now been completed, thank you to all those who registered and…
Patient-Expert Meeting, Rio 2017
RioThe host city of the 2016 Olympic Games is now the proposed venue for the 2nd International Patient-Expert Meeting for Homocystinuria. The Meeting is being scheduled outside of the scientific…
Cobalamin-Related Remethylation Disorders and MTHFR Deficiency Guidelines Webinar
Thank you to everyone who attended the online webinar featuring Dr. Carlo Dionisi-Vici, one of the first authors of the Guidelines for diagnosis and management of the cobalamin-related remethylation disorder…
Milford Track World Rare Disease Day 2017
Assemble the hiking boots and get ready to take on what has been described as "the finest walk in the world". Experience New Zealand's Milford Sound next World Rare Disease…
Clinical Guidelines Webinar
Join us for an online webinar featuring Doctor Andrew Morris, the first named author on the recently published Guidelines for the diagnosis and management of cystathionine beta-synthase deficiency from the…
Patient & Expert Meet, Prague 2016
Novotel Praha Wenceslas Square Kateřinská 38, 120 00, PragueIt is our pleasure to share with you details of the HCU and Methylation Defects Patient & Expert Meet planned for World Rare Disease Day, 2016. The Meet is being…