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February 2019

Patient-Expert Meeting 2019

Feb 2019

On behalf of the organising committee, I would like to invite you to Rome, Italy, on Thursday 28th February – Friday 1st March 2019 for the 3rd International Homocystinurias Patient-Expert Meeting. The meeting will bring together leaders in the field of homocystinuria research, clinical care, nutrition and advocacy for a two day conference. The meeting will be held in conjunction with Rare Disease Day 2019 on 28th February. More details will be shared soon. We are now calling for Expression of Interest for the Patient-Expert…

September 2017

Patient-Expert Meeting, Rio 2017

Sep 2017

The host city of the 2016 Olympic Games is now the proposed venue for the 2nd International Patient-Expert Meeting for Homocystinuria. The Meeting is being scheduled outside of the scientific programme of the 13th International Congress of Inborn Errors of Metabolism (ICIEM) giving congress participants the opportunity to attend. The meeting will enable stakeholders to come together and share their expertise and experiences. We are now calling for expression of interest for the 2017 Patient-Expert Meeting. For more information about…