Who we are

HCU Network Australia

hcu-who
HCU Network Australia is a Health Promotion Charity established in 2014, with the vision “to be a driving force in the journey to a cure, improving quality of life along the way”. Our aim is to improve individual outcomes through education, research and support.

Our priorities are to:

  • Connect and support people impacted by homocystinuria;
  • Improve the diagnosis path to enable appropriate treatment;
  • Provide education and information to people impacted by homocystinuria;
  • Encourage and support clinical research, research for novel therapies and ultimately a cure; and
  • Raise funds to achieve our objectives.

HCU Network Australia is governed by an Executive Committee. We are registered and classified as a Health Promotion Charity by the Australian Government. We are also endorsed with Deductible Gift Recipient (DGR) status by the Australian Taxation Office.