HCU Network Australia is a Health Promotion Charity established in 2014 with the vision “to be a driving force in the journey to a cure, improving quality of life along the way.” Our aim is to achieve meaningful progress and improved health outcomes for the HCU community through supporting the patient and their families, reducing the barriers to accurate diagnosis and foremost supporting and encouraging research for improved treatments options and ultimately a cure.
HCU Updates
The key to improving outcomes
An accurate diagnosis is the first step to improving the care and outcomes for those …
Experience of diagnosis and patient satisfaction
There is currently limited evidence showing the considerable length of time taken i…
Growth patterns in Irish B6 non responsive homocystinuria patients
At last year's International Congress of Inborn Errors of Metabolism (ICIEM) Orla Pu…
Events
On behalf of the organising committee, I would like to invite you to Rome, Italy, on Thursday 28th February - Friday 1st March 2019 for the 3rd International Homocystinurias Pat…
AccuGo for HCU
AccuGo for HCU was designed to ease the day to day management of the HCU diet by providing a quick and easy way to track foods eaten. We thank AccuGo for their generosity and support in its development.
Learn more about AccuGo for HCU Download the AccuGo brochure
